There is someone very special that I would like to introduce you to. His
name is John Ntenderi. He is 16 years old and has one of the sweetest
spirits in the village. His dad died when he was 9 years old and so he is left with his mom, step dad and from what I can figure, 8 siblings. He is a hard worker and just finished Primary 7, which is basically like 8th grade. He will begin secondary school in February. John is a smart kid who loves Jesus and is kind to everyone he comes in contact with.
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| This is the look that stays on John's face most of the time. |
Unfortunately, John doesn't get to enjoy most of the things that the other kids his age get to enjoy. He can't play soccer, he can't run around with the other kids, and he has to take it pretty easy when it comes to walking around standing up for too long. John has a swollen right leg that prevents him from doing any of these things and more. It has progressively gotten worse since birth, and because he family doesn't have much money at all, he hasn't been able to have it treated.
John was one of the first people that I met when I moved here to Uganda in September. He was one of the first people at church in the morning, and came right up to introduce himself to me and ask my name. I couldn't forget the smile of this sweet kid. Later I was told by my housemate that he was in her Sunday School class and was a sweet, faithful kid. Then I noticed that he didn't really go out and play with the other kids and when I asked why they showed me his swollen leg.
It wasn't until one night I was at my house getting ready for dinner, and I heard John outside my door saying that he was hurt. When I went outside he told me that he had fallen off his bike and his arm was pretty bloody. So, like the gifted nurse that I am (sarcasm) I grabbed the medical supplies and cleaned the guy up. It wasn't a horrible cut, but it did need some attention. But, even after I bandaged it up, John was still saying that he was in pain. I asked him what was bothering him and he explained that the compression sock that he had been wearing on his leg in order to help with the swelling had lost its elasticity and wasn't doing anything anymore. So, after checking it out I told him that the next time I was in town I could pick him up a new one. But, I realized that it was only a temporary fix to his problem so I began to do a little research on his problem.
| John after his baptism. He was so excited to finally be baptized. |
After Googling his symptoms and checking out what I could on WebMD, which is about the extent of my medical expertise, I figured out that John had a circulation problem and that we should have him go see a doctor so that we could get a proper diagnosis that didn't come from the internet. So off to Kampala we went. This was John's second time to the capitol, and I'm pretty sure that he was thrilled to get to go, even if it was to be poked and prodded by doctors. We spent the day running from one doctor to the next, getting everything from a general check up, to a heart echo, to ultrasounds on his leg. Eventually, we were able to figure out that he has something called Arteriovenous Malformation. Which basically means that when he was born the capillaries in his right leg weren't formed correctly so his veins and arteries aren't connected properly which causes the swelling because the blood isn't being distributed correctly.
The doctor that diagnosed him gave us a referral to see the top vascular surgeon in Uganda to have a final test run in order to see if it is operable. Since we had just spent about 6 hours going from one doctor to the next, we didn't have time to go and see him that day, but we are going to be able to go in hopefully before Christmas sometime and see if we can get John's leg fixed. Unfortunately, the doctor said that he doesn't think that the swelling will go down all the way even if he can have the surgery because of all the damaged tissue from 16 years of swelling, but some of the swelling with go away and he won't have to deal with the pain anymore.
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| He's definitely Ugandan, refusing the fork at all times. |
The hope is that John can have the surgery and be able to walk to and from school without being in severe pain, and maybe even play some soccer with his friends. He is such a sweet boy and doesn't let this thorn in the flesh hinder him from loving others and loving God. He has been to my house about 3 times since we returned from the doctors' appointments to thank me for loving him and trying to help his leg. Today he told me that even if his leg can't be fixed he will still be thankful that I took the time to try. I have learned so much from his perspective on life. John has challenged me to see all the ways that I can serve others even if there are ways that they can be serving me. John could sit around and use the fact that it's hard for him to walk as a reason that he shouldn't give of himself to those who could use a little love. There are so many smaller hurdles in my life that I am not willing to jump over in order to love others around me. Some days I wish that I didn't have to walk to bible study because it's hot, or I had a long day teaching. I can say now that when I am tempted to grumble or complain I will remember mine and John's long day in Kampala sitting and waiting all day, and how John never once showed that he was frustrated with the fact that we were not being seen right at our appointment time even if I was struggling to hold my tongue to the assistants working in the office.
Please be in prayer for John as I continue to figure out how to best help him and get his leg healed. Pray that I would persevere as I figure out how to navigate the medical scene here in Uganda. Pray that John's doctors and surgeon would have wisdom and guidance as we move forward, and that there would be a solution to the problem. And pray that I would learn to never grumble or complain, that I would remember that every day is a gift and a blessing from the Lord.




